Category Archives: Ileostomy

J-Pouch FAQ

Quick update: My wife and baby are doing great, and we’re adjusting to the new normal of having a baby at home. I have not yet rescheduled my takedown surgery, but am aiming for some time next year. In the … Continue reading

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“Official Report: No leaks; no stricture”

That was the email from my surgeon this afternoon following my pouchogram.  Good news. Now all I have to do is have the surgery. For those new to Know Guts, a pouchogram is contrast X-ray used to detect leaks or other … Continue reading

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No More Hems and Haws

Yesterday, I went whitewater rafting on my company’s annual trip.  I’ve done this trip a bunch of times over the years, but this time was different.  This was my first trip without a colon and—more importantly—with an ileostomy.  I was … Continue reading

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Getting Ready for Surgery

I had my final pre-op appointment with my surgeon today.  We talked about the procedure.  My concerns.  Her concerns.  In light of the problems last time, rather than just jump right in and do the takedown, she’s going to take … Continue reading

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The Optimistic Route

As my surgery date approaches, I’ve continued to waffle about what to do or whether to go through with it at all.  I know I need to do something.  My current loop ileostomy is not a permanent solution.  It will … Continue reading

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Taking Steps

Yesterday was the Take Steps for Crohn’s and Colitis walk in San Francisco.  I was grateful to participate (last year I was too sick), and we had a lot of fun.  There were a ton of people there, including lots … Continue reading

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Decisions, Decisions

It’s been awhile since my last real update.  Healthwise, I’m doing pretty well.  The stoma skin issues I was having have resolved (debriding agent and calcium alginate really works wonders), and I haven’t had any recent complications.  But life keeps … Continue reading

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Stoma Stories, Episode 17: I Told You So

As predicted, the new ostomy appliance we decided to try to assist with the healing of the newly formed hole in my skin near my stoma failed.  I’m not sure when it started it leaking, though I suspect it was … Continue reading

Posted in Complications, Ileostomy, J-Pouch, Stoma Stories, Ulcerative Colitis | Tagged , , | 1 Comment

Stoma Stories, Episode 16: The Hole Truth (GRAPHIC PHOTOS)

In an unwelcome development, after months of smooth sailing, an issue has developed on the skin surrounding my stoma.  More specifically, a hole has suddenly appeared.  About a week ago, I noticed some minor skin irritation and a slight divot … Continue reading

Posted in Ileostomy, J-Pouch, Stoma Stories | Tagged , , | 19 Comments

Where Things Stand

On March 30, I had a clinic visit with my surgeon.  It was the first time I’ve seen her (or any doctor) this year, which is pretty amazing.  The purpose of the visit was to go over the results of the … Continue reading

Posted in Ileostomy, J-Pouch, Surgery, Ulcerative Colitis | Tagged , , , | 1 Comment