Tag Archives: support

Life’s Plans

I was scheduled to have my takedown surgery (second try) on July 2, and I was ready to go. But life had other plans. Two days before surgery (June 30), my wife and I spent the day assembling nursery furniture, … Continue reading

Posted in J-Pouch, Support, Surgery, Ulcerative Colitis | Tagged , , , | 3 Comments

How to be a Patient

After three extended hospital stays in four months, I thought it might be helpful to share a few things I’ve learned that I believe can make a hospital stay not only more comfortable, but more likely to result in a … Continue reading

Posted in Ileostomy, J-Pouch, Recovery, Support, Surgery, Ulcerative Colitis | Tagged , , , , , | 6 Comments

Breathe In, Breathe Out

Today, I breathed. For the first time in months.  A little explanation: Back in my I-gotta-try-every–possible–solution-before-surgery phase, I was desperate for options. And answers. I was willing to try just about anything. It was in the midst of this search … Continue reading

Posted in Recovery, Support, Surgery, Ulcerative Colitis, Uncategorized | Tagged , , | 1 Comment

Tired

I realize this blog is starting to get a little depressing, but I write it as I live it. I’m tired. Tired, tired, tired. Tired of ostomy bag leaks. Tired of stinging/burning around my stoma. Tired of having a stoma. … Continue reading

Posted in Complications, Complications, Ileostomy, J-Pouch, Support, Surgery, Ulcerative Colitis | Tagged , , , , , | Leave a comment

Happy Anniversary

Today is my sixth wedding anniversary. If it hasn’t been apparent from my posts so far, I COULD NOT do this without my wife. This is way more than she (or anyone) signed up for, and she’s been with me, … Continue reading

Posted in Complications, Ileostomy, J-Pouch, Recovery, Support, Surgery, Ulcerative Colitis | Tagged , , , , , | Leave a comment

Keeping Perspective

This week has been tough. Probably the toughest since surgery. What should have been the week I returned to work and some sense of normalcy instead became the week I learned that there’s a leak in my J-Pouch, which will … Continue reading

Posted in Complications, Complications, Ileostomy, J-Pouch, Recovery, Support, Surgery, Ulcerative Colitis | Tagged , , , , , | Leave a comment

The (Slow) Road of Recovery

My (final?) home nurse visit yesterday went well. Changing the appliance revealed that there had been absolutely no leakage under the wafer, which is great. The skin looked about the same as on Friday—i.e., the surface skin was improved, but … Continue reading

Posted in Ileostomy, J-Pouch, Recovery, Support, Surgery, Ulcerative Colitis | Tagged , , , , , | 3 Comments

Stoma Stories, Episode 7: Back to UCSF

The never-ending battle between me and stoma (and the irritated skin surrounding it) led back to UCSF today for an appointment with my surgeon’s nurse. I showed her my “turtlenecked” wafer and resulting semi-recessed stoma and asked “Is that what … Continue reading

Posted in Complications, Ileostomy, J-Pouch, Stoma Stories, Surgery, Ulcerative Colitis | Tagged , , , , , | 2 Comments

Stoma Stories, Episode 6: Learning Some Stuff

Today was a better day. The skin around my stoma still hurts, and I’m still concerned my output is leaking under my wafer, but it was a better day. I made an appointment to see my surgeon’s NP again tomorrow, … Continue reading

Posted in Complications, Ileostomy, J-Pouch, Stoma Stories, Surgery, Ulcerative Colitis | Tagged , , , , , | 1 Comment

Stoma Stories, Episode 5: A Breakdown

Just when I thought matters might be improving, things took a turn and last night was the most difficult night for me since surgery—at least emotionally. The day was pretty good, with my stoma pretty well-behaved. It still burned at … Continue reading

Posted in Complications, Ileostomy, J-Pouch, Stoma Stories, Surgery, Ulcerative Colitis | Tagged , , , , , | 1 Comment